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DTSTART;VALUE=DATE:20260326
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DTSTAMP:20260404T111701
CREATED:20260327T183033Z
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UID:10000004-1774483200-1779839999@epidermolysisbullosanews.com
SUMMARY:Plunge for Elodie 2026
DESCRIPTION:Named after 9-year-old Elodie Kubik\, who lives with a severe form of EB\, the Plunge began as a local effort in Wellesley\, Massachusetts\, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support\, and as they learned about EB and the larger rare disease community\, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus\, the first Plunge for Elodie took place in 2018 and since has exploded into a global movement with 20+ sites around the world!
URL:https://epidermolysisbullosanews.com/event/plunge-for-elodie-2026/
LOCATION:NY
CATEGORIES:EB Research Partnership
ATTACH;FMTTYPE=image/jpeg:https://epidermolysisbullosanews.com/wp-content/uploads/2026/03/Plunge-for-Elodie-e1774635714477.jpg
ORGANIZER;CN="EB Research Partnership":MAILTO:allison@ebresearch.org
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