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DTSTART;VALUE=DATE:20260326
DTEND;VALUE=DATE:20260527
DTSTAMP:20260404T063019
CREATED:20260327T183033Z
LAST-MODIFIED:20260327T183033Z
UID:10000004-1774483200-1779839999@epidermolysisbullosanews.com
SUMMARY:Plunge for Elodie 2026
DESCRIPTION:Named after 9-year-old Elodie Kubik\, who lives with a severe form of EB\, the Plunge began as a local effort in Wellesley\, Massachusetts\, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support\, and as they learned about EB and the larger rare disease community\, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus\, the first Plunge for Elodie took place in 2018 and since has exploded into a global movement with 20+ sites around the world!
URL:https://epidermolysisbullosanews.com/event/plunge-for-elodie-2026/
CATEGORIES:EB Research Partnership
ATTACH;FMTTYPE=image/jpeg:https://epidermolysisbullosanews.com/wp-content/uploads/2026/03/Plunge-for-Elodie-e1774635714477.jpg
ORGANIZER;CN="EB Research Partnership":MAILTO:allison@ebresearch.org
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DTSTART;VALUE=DATE:20260414
DTEND;VALUE=DATE:20260517
DTSTAMP:20260404T063019
CREATED:20260327T183052Z
LAST-MODIFIED:20260327T183052Z
UID:10000005-1776124800-1778975999@epidermolysisbullosanews.com
SUMMARY:Vedder Cup
DESCRIPTION:When the San Diego Padres and Seattle Mariners face off again this season\, more than division standings are on the line. Teaming up again to join forces with rock icon Eddie Vedder\, the Vedder Cup is officially back\, transforming a long-standing fan nickname into a spirited West Coast rivalry with purpose. Named in honor of the Rock & Roll Hall of Famer and former resident of both San Diego and Seattle\, the six-game season series has transformed into a platform to advance EB Research Partnership’s mission to fund critical treatments and cures for EB. \n            \n                \n                \n            \n			\n\nFor San Diego Tickets  \nFor Seattle Tickets
URL:https://epidermolysisbullosanews.com/event/vedder-cup/
CATEGORIES:EB Research Partnership
ATTACH;FMTTYPE=image/jpeg:https://epidermolysisbullosanews.com/wp-content/uploads/2026/03/Vedder-Cup-e1774635967934.jpg
ORGANIZER;CN="EB Research Partnership":MAILTO:allison@ebresearch.org
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DTSTART;TZID=America/Chicago:20260502T090000
DTEND;TZID=America/Chicago:20260502T120000
DTSTAMP:20260404T063019
CREATED:20260327T183113Z
LAST-MODIFIED:20260327T183113Z
UID:10000006-1777712400-1777723200@epidermolysisbullosanews.com
SUMMARY:Grateful for Graham 5K
DESCRIPTION:The fifth annual Grateful for Graham 5K Run/Walk will take place on May 2nd. Graham Robertello is a 6 year old boy and local superhero who was born with EB. All proceeds raised will go directly to EBRP to help accelerate treatments and find a cure for EB! The event will be a 5K “out and back” run and walk. The event will also feature a Stroller Division because Graham loves going out on runs in the stroller with his mom. Whether you run\, walk\, or cheer\, your participation makes a real difference. Register now and help make this the biggest and best Grateful for Graham 5K yet!
URL:https://epidermolysisbullosanews.com/event/grateful-for-graham-5k-2/
LOCATION:Rayhill Memorial Trail\, Middle Settlement Rd\, New Hartford\, NY\, 13413\, United States
CATEGORIES:EB Research Partnership
ATTACH;FMTTYPE=image/png:https://epidermolysisbullosanews.com/wp-content/uploads/2026/03/Grateful-for-Graham-e1774636159273.png
ORGANIZER;CN="EB Research Partnership":MAILTO:allison@ebresearch.org
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