Selumetinib, a drug that’s approved to treat certain types of neurological tumors, may be an effective treatment for skin cancers in people with recessive dystrophic epidermolysis bullosa (RDEB), according to a new study. Researchers found that selumetinib treatment killed cancer cells in dish-based tests, while experiments in mouse models…
Discussion
When we decided to enroll our 5-year-old daughter, whom we’ve nicknamed “Little Star,” in a music and piano course, we didn’t do it with the future in mind. With her epidermolysis bullosa, “future” is a fragile word, one you learn to whisper. We don’t know how long she will…
Women with epidermolysis bullosa (EB) generally do not experience a worsening of disease symptoms during pregnancy — in fact, some expectant mothers with EB, particularly those with more severe disease, report that symptoms such as itching and blistering ease during pregnancy. Those are the findings of a new study…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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