Doubling the standard dose of the gene therapy Vyjuvek (beremagene geperpavec) successfully healed widespread wounds in a woman with recessive dystrophic epidermolysis bullosa (RDEB) without causing side effects, a new case report shows. While the topical gel is already approved in the U.S. to treat the disease, the…
Discussion
The holiday season always seems a little strange to me, as it’s a time for family and looking forward, but also a time to look back. This holiday season, I’m acutely aware of the narrowing of our family’s faith community over the last five years. Until 2020, having a faith…
Scientists in the U.K. have secured funding for a clinical trial that will test whether multiple drugs used to treat other, more common skin disorders might be repurposed to treat epidermolysis bullosa (EB) The upcoming study, dubbed the Advancing Repurposed Therapeutics (ART) EB trial, will be led by Su…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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