Epidermolysis bullosa (EB) is, in many ways, a very visible disease. You can see the bandages. The wrapping. The wounds. The scarring. Even if someone doesn’t know exactly what EB is, they can tell something is wrong. But there is still so much that goes unseen, and sometimes, that’s…
An 81-year-old man with junctional epidermolysis bullosa (JEB) has lived with recurrent blistering since childhood and developed multiple cancers over his lifetime, including skin cancers and urothelial carcinoma, a rare cancer of the urethra, a case study reports. Of the multiple skin cancers, most of them were squamous cell…
Discussion
Back in mid-January, my son Jonah, who battles junctional epidermolysis bullosa on a daily basis, got the flu. I had (unintentionally) neglected to get him a flu shot, and although it was influenza B — supposedly the less severe strain — and he was on Tamiflu (oseltamivir), it kicked…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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