Columns

My mom got an adorable kitten last weekend. When I showed my boys the sweet picture she texted us, Jonah questioned me about our cat that we re-homed when ... Read more

November 5, 2020November 3, 2020

The Difficult Decision in Favor of a Feeding Tube, Part 2

Columns, Fragile but Fierce – a Column by Patrice Williams

Last in a series. Read part one. After our son Jonah was born with junctional epidermolysis bullosa, we made the difficult decision for him to get a gastrostomy feeding ... Read more

October 27, 2020October 23, 2020

Say Hello to This Year’s Cover Model

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

This month, one of my childhood dreams came true. Ever since I was 15, I secretly wanted to be a model. But because I have scars on my body ... Read more

October 22, 2020October 20, 2020

The Difficult Decision in Favor of a Feeding Tube, Part 1

Columns, Fragile but Fierce – a Column by Patrice Williams

First in a two-part series. Our son Jonah, who was born with junctional epidermolysis bullosa in 2009, struggled to eat from the beginning. It was one of the main ... Read more

October 8, 2020October 6, 2020

Interview With the Butterfly, Part 2

Columns, Fragile but Fierce – a Column by Patrice Williams

Last in a series. Read part one. I continued an interview this week with my son Jonah, who is 11 and was born with junctional epidermolysis bullosa (EB), after ... Read more

October 6, 2020October 2, 2020

On Going That Extra Mile

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

Living with a rare disease, all I wanted my entire life was to be “normal” and to fit in. But I’ve since changed my mind. Not only have I ... Read more

September 17, 2020September 16, 2020

Interview With the Butterfly, Part 1

Columns, Fragile but Fierce – a Column by Patrice Williams

First in a series. My son Jonah was born with junctional epidermolysis bullosa in 2009. He is now 11 and in the sixth grade. I am honored to write this ... Read more

September 3, 2020September 15, 2020

Focusing on the Manna for Today

Columns, Fragile but Fierce – a Column by Patrice Williams

Our son Jonah is 11 years old now and just began the sixth grade. It blows my mind to think that it has been 11 years since our journey ... Read more

September 1, 2020August 27, 2020

Rethink, Accept, and Appreciate Your Unique Self

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

I am finally back at BioNews and writing as “The Girl with the Butterfly Tattoo.” I can’t tell you how much I’ve missed writing. Due to the coronavirus and ... Read more

August 20, 2020August 19, 2020

If You Are Struggling, Find Your Army

Columns, Fragile but Fierce – a Column by Patrice Williams

When my son Jonah was born with epidermolysis bullosa, saying it was a shock is a gross understatement. Unknowingly, my husband, Matt, and I each carried mutated genes that, ... Read more