Columns

First in a series. My son Jonah was born with junctional epidermolysis bullosa in 2009. He is now 11 and in the sixth grade. I am honored to write this ... Read more

September 3, 2020September 15, 2020

Focusing on the Manna for Today

Columns, Fragile but Fierce – a Column by Patrice Williams

Our son Jonah is 11 years old now and just began the sixth grade. It blows my mind to think that it has been 11 years since our journey ... Read more

September 1, 2020August 27, 2020

Rethink, Accept, and Appreciate Your Unique Self

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

I am finally back at BioNews and writing as “The Girl with the Butterfly Tattoo.” I can’t tell you how much I’ve missed writing. Due to the coronavirus and ... Read more

August 20, 2020August 19, 2020

If You Are Struggling, Find Your Army

Columns, Fragile but Fierce – a Column by Patrice Williams

When my son Jonah was born with epidermolysis bullosa, saying it was a shock is a gross understatement. Unknowingly, my husband, Matt, and I each carried mutated genes that, ... Read more

August 6, 2020August 3, 2020

Choosing Between Bad and Worse, I Learned to Become an Advocate

Columns, Fragile but Fierce – a Column by Patrice Williams

The scariest thing about a rare disease is that nobody has the answers you’re desperately seeking. When you are facing something so unfamiliar and the people who are supposed ... Read more

July 23, 2020August 19, 2020

My Butterfly Baby

Columns, Fragile but Fierce – a Column by Patrice Williams

In most cases I don’t agree that “ignorance is bliss.” In general, the more information we have, the better people we are and the wiser our choices. But there ... Read more

March 17, 2020March 17, 2020

I’m Learning to Be Proud of My Body

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

“People stare at you because you look different. How do you cope with that and why are you proud of the way you look?” This is what Klara Leschanz, ... Read more

February 18, 2020February 17, 2020

On Loving Yourself First

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

What better topic could there be to write about in February than love? Before I started writing this column, I asked what topics people might be interested in reading ... Read more

January 21, 2020January 17, 2020

It’s My Body: Why Unsolicited Comments Can Be Hurtful

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

It’s annoying — yes, freaking annoying — when strangers and even acquaintances feel compelled to comment on another person’s appearance. I’ve heard comments like, “Your skin looks better than ... Read more

December 17, 2019December 13, 2019

All I Want for Christmas Is Everything I Already Have

Columns, Girl with the Butterfly Tattoo – a Column by Lena Riedl

When thinking of a topic for this column, I considered writing on a winter theme. But then, when I think of December, Christmas comes to mind, rather than the ... Read more

Columns

Interview With the Butterfly, Part 1

Focusing on the Manna for Today

Rethink, Accept, and Appreciate Your Unique Self

If You Are Struggling, Find Your Army

Choosing Between Bad and Worse, I Learned to Become an Advocate

My Butterfly Baby

I’m Learning to Be Proud of My Body

On Loving Yourself First

All I Want for Christmas Is Everything I Already Have

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