Advocacy partner: EB Research Partnership

About EB Research Partnership

The mission of EB Research Partnership is to advance life-saving treatments, and ultimately, find a cure for epidermolysis bullosa (EB) by the end of this decade. Secondarily, EBRP’s innovative model is leading the way for all rare diseases. While EB is a rare disease, there are 7,000 rare diseases that affect 1 in 10 people in the world, 95% which have no treatments, that can benefit from the research we fund and our innovative Venture Philanthropy model – both of which are scalable to all rare diseases. Click here to watch The Story of the EB Research Partnership!

Contact: Allison McGettigan – Director of Programs
Phone: 646-844-0902
Email: [email protected]