• When EB Steals Your Cat
  • Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
  • Eddie Vedder Hosts ‘Venture Into Cures,’ Virtual Event Supporting EB Research
  • 1st Patient Treated in Phase 3 Trial of RDEB Gene Therapy, D-Fi
  • NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
  • The Difficult Decision in Favor of a Feeding Tube, Part 2
  • Filsuvez Raises Patients’ Chance of Complete and Quick Wound Healing, Trial Finds
  • 1st RDEB Patient Dosed With PTR-01 Protein Replacement Therapy in Phase 2 Trial
  • UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
  • Say Hello to This Year’s Cover Model
  • The Difficult Decision in Favor of a Feeding Tube, Part 1
  • Debra Plans Events in US, UK to Mark EB Awareness Week