• DAAC Dressing Closes EB Wounds Faster Than Standard Saline-Antibiotic One, Study Says
  • Cell Therapy for RDEB Needs Collagen VII Repair in Two Types Skin Cells to Achieve Stability, Study Finds
  • ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases
  • First Patient Dosed in Phase 2 Trial of RGN-137 Achieves Complete Wound Healing, RegeneRx Announces
  • At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing
  • Injecting Engineered Cells May Prevent Blistering in RDEB, Study Indicates
  • Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases
  • Amryt Releases Design of Pivotal Trial Evaluating Oleogel-S10 for EB Patients of All Ages
  • Aegle Wins Debra’s Partners in Progress Award, Plans to Soon Open Clinical Trial in DEB Patients
  • Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
  • Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
  • Gene-modified Skin Cells Show Promise for RDEB in Phase 1 Trial