• Phase 3 Trial of Gene Therapy B-VEC for DEB Expected to Start by June
  • NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts
  • Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak
  • Cannabinoid Cream PPP004 Receives FDA Orphan Drug Designation to Treat EB
  • Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say
  • NORD Opens COVID-19 Financial Aid Program for Rare Disease Community
  • Oral Dapsone Can Lead to Rapid, Sustained Improvement in Inherited EB, Case Report Shows
  • Early Study of RDEB Gene Therapy Using SkinGun as Delivery Vehicle
  • Phase 1 Trial of EB Cannabinol Cream Completes Treatment in Healthy Volunteers
  • NORD’s Advice on COVID-19: You’re Stronger Than You Think
  • $75M Funding to Advance Gene Therapy for RDEB Entering Phase 3 Trial