• What ‘Rare’ Means to Me This Rare Disease Day
  • Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion
  • Umbilical Cord Stem Cells Eased RDEB Symptoms
  • Rare Disease Day at NIH, Set for March 1, Growing Year by Year
  • How We Began Educating Our Community About EB
  • Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients
  • Pandemic Won’t Stop Rare Disease Day on Feb. 28
  • Fighting for Insurance to Cover My Son’s Lifesaving Bandages
  • Staph Infections Prevalent in EB Skin Wounds
  • NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
  • By Focusing on What I Can Control, I’m Finding the Good in 2020
  • Phase 3 Trial of EB-101 Cell Therapy Seeks to Complete Enrollment This Year