Helen Parker Atkinson,  —

Rare Disease Day 2023

Recent Posts

• Companies team up to ID biomarkers for cancer treatment in RDEB
• 30+ conditions more common in EBA patients ID’d in study
• RDEB patient undergoes safe gold weight implant in eyelids: Report
• As my baby grows up, I must learn to let go
• Plunge for Elodie set to surpass $2M raised for EB disease research