It is vital to take care of your body, especially when you live with a health condition. Otherwise, you might…
Articles by Lena Riedl
We all grow up with certain beliefs about ourselves. Sometimes we don’t even question them. Other times, we may realize…
Many people living with rare disease often worry about health issues, government support, insurance, and being accepted by society.
Growing up with a rare skin condition, such as epidermolysis bullosa (EB), gives a person a lot to worry…
In the spring of 2018, I was lucky enough to meet a member of the Bionews team (the parent…
I am in the middle of a big change. It feels like one season of my life is ending, and…
I live with epidermolysis bullosa (EB), a rare skin condition that makes my skin as fragile as the wings of…
The skin is the body’s largest organ, with a total surface area of about 22 square feet. The skin…
Last week, I tried something new, something I never thought I could do because of my condition. Many people told…
This month, I want more diversity. I want to see more reality in the media and in advertisements and commercials.
This month, I was once again impressed by how well connected the epidermolysis bullosa (EB) community is. I remember when…
A few days ago, a friend working in healthcare communications asked: “What does rare mean for you?” It got me…