This year, I want to say thank you. Thank you, 2020! I know that many will think, “Why ‘thank you’?…
Lena Riedl
Austria-born Lena Riedl was born with the rare, genetic skin condition epidermolysis bullosa. She was diagnosed with this condition a few months after she was born, but received a completed diagnosis with the EB subtype recessive dystrophic EB only years after. She works with DEBRA Austria, an organization that supports “butterfly children,” as a patient advocate and in a public relations agency in Vienna, Austria. She loves to be with family and friends and her dog as well as travel, sing, play sports, eat brunch, read, and spend time near the sea.
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Articles by Lena Riedl
I know, normally we associate love with February because of Valentine’s Day and all. I even wrote a column…
My Favorite Summer Dresses
It’s getting dark earlier, and it’s cold and gray where I live. The fallen leaves have lost their shades of…
This month, one of my childhood dreams came true. Ever since I was 15, I secretly wanted to be a…
On Going That Extra Mile
Living with a rare disease, all I wanted my entire life was to be “normal” and to fit in. But…
I am finally back at Bionews and writing as “The Girl with the Butterfly Tattoo.” I can’t tell you…
“People stare at you because you look different. How do you cope with that and why are you proud of…
On Loving Yourself First
What better topic could there be to write about in February than love? Before I started writing this column, I…
It’s annoying — yes, freaking annoying — when strangers and even acquaintances feel compelled to comment on another person’s appearance.
When thinking of a topic for this column, I considered writing on a winter theme. But then, when I think…
I’ve been wanting to write about life with epidermolysis bullosa (EB) — my life as a so-called butterfly child —…
This is the first autumn I’m spending at home in Vienna after living in Marbella, Spain, for over a year.