I used to pray every day that God would heal Jonah, my son. I don’t pray for that anymore. It’s…
Patrice Williams
Patrice Williams is mother to two boys: Jonah, who was born in 2009 with junctional epidermolysis bullosa, and Gideon. She is married to her sort-of high school sweetheart, Matt. They live in Winston-Salem, North Carolina with their two smelly dogs. Patrice works in communications for a nonprofit child welfare organization. She loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
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Articles by Patrice Williams
Independence. It’s a concept we think about a lot this time of year. Together as a nation, we observe Juneteenth…
My husband, Matt, and I just returned from six days and nights in the Riviera Maya, Mexico. We stayed at…
Earlier this week, my son Jonah and I had a visit with his pain doctor, Dr. Savi. She is the…
Every couple of years, I like to interview Jonah, my son with epidermolysis bullosa (EB), for this column.
We’ve always been the family that gets stares. Jonah, our son with epidermolysis bullosa (EB), with his wounds and…
Jack’s first memory of Jonah, my son with epidermolysis bullosa (EB), was at Jonah’s first birthday bash in 2010.
At a men’s basketball game last week at Wake Forest University, my son Jonah, who was born with epidermolysis…
My therapist says I have “high-functioning” anxiety. This is not news to me. I’m thankful to have confirmation…
I went to a baby’s funeral last week. I have been to too many babies’ funerals. Counting last week’s, I’ve…
When our son Jonah, who was born with epidermolysis bullosa (EB), was 3 years old, our requests for educational…
I’m 41 and a half years old, and I started therapy for the first time two weeks ago — real,…