I get so tired of thinking about epidermolysis bullosa (EB). Even as I sit down to write this column,…
Articles by Patrice Williams
Jonah, my son with epidermolysis bullosa, graduated from eighth grade two weeks ago, when he walked across the stage…
“Mom,” my son Jonah, who has epidermolysis bullosa (EB), texted me a couple of weeks ago. “I just accidentally…
“Does he deal with depression?” my dad asked me the other day. I was explaining to him that Jonah,…
My son Jonah turned 14 at the end of last month. To celebrate, he invited 10 (!) kids over to…
“Next we come to someone I have watched since he was very little,” she said, her voice beginning to break,…
I went to get my first massage last week. Well, sort of my first. When Jonah, my son with…
You guys. Why didn’t you message and tell me to “hush your face” after my last column? Someone should…
Thanksgiving is my favorite holiday. It’s all the feelings of togetherness and nostalgia without the commercialism and money-spending of Christmas…
It’s no secret that my 13-year-old son, Jonah, who battles epidermolysis bullosa (EB), has become a huge sports fan.
Recently, the Carolina Classic Fair came to our hometown. For 10 days, children, teens, and adults in our…
I write this column as the caregiver and (obviously supercool) mom of Jonah, 13, who has epidermolysis bullosa (EB).