My cellphone rang at work last Thursday at 1:21 p.m. It was a call from my son Jonah’s phone. While…
Articles by Patrice Williams
Every rare disease family needs a Clair. Jonah has had one since second grade. My friend Lauren is currently…
Last week was our 19th annual “Cousin Camp” trip to the beach with my husband’s extended family. Thirty people attended,…
Last week in North Carolina, the feel-like temperature was 105 F. And this week has been in the mid-90s.
I heard my son Jonah sigh as he sat in the stadium seat beside me at Friday night’s minor…
I have had two friends in the last three months give birth to premature babies. The first, Izzy, was…
On Saturday night at 10 p.m., when we were exhausted and had spent the entire day at the baseball field,…
“Dilly Dilly!” Jonah said as he drank yet another virgin strawberry daiquiri. “Do we have these in America?” he asked…
I went down a rabbit hole this morning reading my old blog posts from 13 years ago, when our son…
In light of Rare Disease Day on Feb. 28, I wanted to answer some common questions I am asked about…
It has been 13 years since we spent 32 days in the neonatal intensive care unit with our son…
My son Jonah, 12, had oral surgery on Dec. 22, which involved a simple extraction and some coating on…