“Does he even know that it’s not normal?” my friend Trent asked. He was referring to the fact that my…
Articles by Patrice Williams
My husband and I knew we would have problems to contend with after our son Jonah was born…
After more than 12 years of watching my son, Jonah, battle epidermolysis bullosa, and battling it…
Heading back to school has always been a bit rough for my son Jonah, who lives with junctional epidermolysis bullosa…
I think middle schoolers are a bunch of weirdos. I thought this even before Jonah, my son with junctional epidermolysis…
I love Facebook‘s Memories feature. Although it can be a negative space, I do value it as a digital…
I’m avoiding packing. I have a two-page packing list with three columns per page staring up at me from my…
Our son Jonah’s last day of sixth grade was last week. Like every kid, he brought home loads…
“Did a wolf attack your face?” That’s what the preteen asked my…
We have good days and bad days, and good weeks and bad weeks. Twelve years into our…
My son Jonah loves baseball. He watches almost every Atlanta Braves game on TV and looks at…
Like with everything involving epidermolysis bullosa, finding the best bandage routine for our son Jonah, who was…