Last in a series. Read part one. After our son Jonah was born with junctional…
Patrice Williams
Patrice Williams is mother to two boys: Jonah, who was born in 2009 with junctional epidermolysis bullosa, and Gideon. She is married to her sort-of high school sweetheart, Matt. They live in Winston-Salem, North Carolina with their two smelly dogs. Patrice works in communications for a nonprofit child welfare organization. She loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
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Articles by Patrice Williams
First in a two-part series. Our son Jonah, who was born with junctional epidermolysis bullosa in 2009, struggled…
Last in a series. Read part one. I continued an interview this week with my son Jonah,…
First in a series. My son Jonah was born with junctional epidermolysis bullosa in 2009. He is now 11 and…
Focusing on the Manna for Today
Our son Jonah is 11 years old now and just began the sixth grade. It blows my mind…
When my son Jonah was born with epidermolysis bullosa, saying it was a shock is a gross understatement.
The scariest thing about a rare disease is that nobody has the answers you’re desperately seeking. When…
My Butterfly Baby
In most cases I don’t agree that “ignorance is bliss.” In general, the more information we have, the…