First in a series. My son Jonah was born with junctional epidermolysis bullosa in 2009. He is now 11 and…
Patrice Williams
Patrice Williams is mother to two boys: Jonah, who was born in 2009 with junctional epidermolysis bullosa, and Gideon. She is married to her sort-of high school sweetheart, Matt. They live in Winston-Salem, North Carolina with their two smelly dogs. Patrice works in communications for a nonprofit child welfare organization. She loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Patrice Williams
Focusing on the Manna for Today
Our son Jonah is 11 years old now and just began the sixth grade. It blows my mind…
When my son Jonah was born with epidermolysis bullosa, saying it was a shock is a gross understatement.
The scariest thing about a rare disease is that nobody has the answers you’re desperately seeking. When…
My Butterfly Baby
In most cases I don’t agree that “ignorance is bliss.” In general, the more information we have, the…