Valentina Morra,  —

Valentina Morra is the mother of a little girl living with recessive dystrophic epidermolysis bullosa (RDEB), a rare and painful genetic condition. Her daughter’s diagnosis changed the course of her life, transforming her from a researcher in cell biology into an advocate for rare disease patients and families. Based in Italy, she now serves as scientific coordinator and board member of DEBRA Italia, where she combines science and empathy to raise awareness, support research, and build a community of care and hope around EB.