In the Skin - a Column by Molly Rozelle

At 20, I welcomed my first child via cesarean section, a moment of joy that came with unexpected challenges because of my mild case of epidermolysis bullosa (EB). While my skin is sensitive and blisters easily, my EB is manageable compared with many others with the condition. Still, the…

A year and a half ago, while scrolling through social media, I encountered a wonderful form of tattooing that I hadn’t seen or heard before. This delicate art form is known in the industry as restorative tattooing. Its mission is to restore a physical attribute to a person who’s lost…

Living with epidermolysis bullosa (EB) is a daily lesson in resilience. One challenge that doesn’t get enough airtime: our teeth. If you have EB, or care for someone who does, you’ve probably noticed that dental problems come with their own special brand of chaos.

I’m currently working on accepting my physical imperfections. At this point in my life, motherhood and epidermolysis bullosa (EB) have been the greatest contributors to insecurities about my appearance. With motherhood, my body has transformed into various shapes and sizes, while EB has left me with scarring and…

Have any of you ever had to share a “fun fact” about yourself following the awkward icebreaker prompt? I’ll go first this time. I don’t have toenails. Loss of toenails is one of my most loathed physical symptoms of epidermolysis bullosa (EB). This anatomical difference has caused me a…

I was diagnosed with epidermolysis bullosa simplex (EBS) of the Köbner type (now simply known as generalized EBS) when I was just 18 months old. Epidermolysis bullosa (EB) is a rare genetic disease that causes extremely fragile skin that blisters easily and heals slowly. I don’t remember being…