Columns

All I Want for Christmas Is Everything I Already Have

When thinking of a topic for this column, I considered writing on a winter theme. But then, when I think of December, Christmas comes to mind, rather than the season’s cold weather. Christmas for me is family and friends, drinking hot cocoa, wrapped in warm blankets, wearing fluffy socks, and…

I Look Forward to Telling My Epidermolysis Bullosa Story

I’ve been wanting to write about life with epidermolysis bullosa (EB) — my life as a so-called butterfly child — for a long time. But I never really knew how to start. Then I was asked to write a column. I was flattered, but I had to start thinking and…