EB Research Partnership

  1. Events
  2. EB Research Partnership

Events Search and Views Navigation

Event Views Navigation

Today

Monthly Town Halls

Virtual Event Virtual Event

EB Research's monthly Town Hall series aims to give the EB community a space to connect not just with each other, but with our team and with leading scientists and researchers in the space to learn more about the work EBRP is funding, understand how they can get involved, and directly ask any questions they might […]

Plunge for Elodie

Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support, and as they learned about EB and the larger rare disease community, […]