EB Research Partnership

Named after 9-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. […]

When the San Diego Padres and Seattle Mariners face off again this season, more than division standings are on the line. Teaming up again to join forces with rock icon […]

The fifth annual Grateful for Graham 5K Run/Walk will take place on May 2nd. Graham Robertello is a 6 year old boy and local superhero who was born with EB. All proceeds raised will go directly to EBRP to help accelerate treatments and find a cure for EB! The event will be a 5K "out […]