Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support, and as they learned about EB and the larger rare disease community, […]

The fourth annual Grateful for Graham 5K Run/Walk will take place on May 3rd. Graham Robertello is a 5 year old boy who was born with Epidermolysis Bullosa (EB). All proceeds raised will go directly to EBRP to help accelerate treatments and find a cure for EB! The event will be a 5K "out and […]