Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. […]

The fourth annual Grateful for Graham 5K Run/Walk will take place on May 3rd. Graham Robertello is a 5 year old boy who was born with Epidermolysis Bullosa (EB). All proceeds raised will go directly to EBRP to help accelerate treatments and find a cure for EB! The event will be a 5K "out and […]