What began as a few friends jumping into icy Massachusetts waters to support a neighbor has surged into a global movement, with the 9th annual Plunge for Elodie set to raise millions for epidermolysis bullosa (EB) research this spring. Running from March through May, the fundraiser has…
Long-term treatment with dupilumab, an injection therapy approved for certain inflammatory conditions, reduces disease severity, promotes wound healing, and eases itch among people with different subtypes of dystrophic epidermolysis bullosa (DEB), including severe DEB. In their real-world study, researchers also reported that DEB patients treated with dupilumab experienced sustained…
A noninvasive ultrasound technique successfully “saw” through the skin of a teenager with severe recessive dystrophic epidermolysis bullosa (RDEB), detecting hidden inflammation and scarring without causing the patient any pain. According to a new case report, high-frequency ultrasound (HFUS) allowed doctors to map disease activity beneath the skin surface…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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