An interview study found that epidermolysis bullosa (EB) can affect nearly every part of children’s daily lives. The children described constant pain and wound care, fear of new wounds, emotional strain, social isolation, and difficulty taking part in normal childhood activities. “Pediatric nurses should provide holistic and child-centered care…
Discussion
Look here. I don’t know how it happened, but we are already in October of my baby’s senior year of high school. And I don’t know if you know this, but the thing that typically happens after a senior year is this thing called college. And preparing for that is,…
Discussion
Tiny packets of cellular cargo called extracellular vesicles (EVs) that are released from placental cells may help calm the chronic inflammation that drives scarring and tissue damage in people with recessive dystrophic epidermolysis bullosa (RDEB), a new study found. In laboratory experiments, these extracellular vesicles shifted inflammatory immune cells…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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