The process of seeking and obtaining employment can be daunting for anybody. Job searching requires confidence, creating professional résumés, and researching multiple job opportunities to figure out which would be the best fit. As someone born with epidermolysis bullosa (EB), I had to consider additional factors as I began…
Discussion
A new biotechnology company called Rinascera Therapeutics has launched to develop therapies for people with epidermolysis bullosa and other rare genetic skin diseases. The company is working to advance two treatment candidates. RIN-002 is being developed for dystrophic epidermolysis bullosa (DEB), while RIN-001 is being developed for another…
Discussion
A young girl with genetically confirmed epidermolysis bullosa simplex experienced a marked reduction in skin blistering — with no new sores for several months — with use of isotretinoin, an oral medication derived from vitamin A, according to a new case report. Its researchers say the child’s case…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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