Recruitment is now underway in a new Phase 3 clinical trial testing SD-101, an experimental cream designed to promote wound healing in people with epidermolysis bullosa (EB). The Phase 3 SD-007 study (NCT07482787) is open to children, ages four weeks through 12 years, who have EB simplex,…
Discussion
In honor of National Epidermolysis Bullosa Awareness Week, held Oct. 25-31, I want to give readers a glimpse into my daily routines and some personal aspects of my life with epidermolysis bullosa (EB) that few get to see. First, I’d like to describe my daily medication routine. I…
Discussion
In the week leading up to Halloween, advocates around the world will wear their clothes inside out to raise awareness of epidermolysis bullosa (EB). EB Awareness Week runs this year from Sunday, Oct. 25, to Saturday, Oct. 31. The Inside Out campaign is being spearheaded by DEBRA International,…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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