• Celebrities Design Alex and Ani Jewelry Collection to Benefit EB Medical Research
  • 2 Gene Mutations Identified as Possible Cause of EBS in One Patient, Researchers Say
  • European Medicines Agency Grants Orphan Drug Status to QR-313 for Dystrophic EB
  • Teen Ambassador Living with Epidermolysis Bullosa Is ‘Pride of Britain’
  • ‘You See a Miracle’: Interview with Scientists on Gene Therapy That Saved Boy Dying of EB
  • Rare Disease Patient Groups Unite to Preserve Orphan Drug Tax Credit in US
  • KB103 Investigational Therapy Receives Clearance from RAC Committee
  • Transplants of Genetically Altered Skin Treats Boy with Epidermolysis Bullosa, Study Shows
  • Potential Gene Therapy for Dystrophic EB, KB103, Named an Orphan Drug by FDA
  • Krystal Biotech Receives $700K Equity-Based Award to Develop Gene Therapy for DEB
  • BERG Receives Partners in Progress Award for Efforts in Treating Epidermolysis Bullosa
  • Children’s National, NORD Partner to Create Rare Disease ‘Centers of Excellence’