Newly diagnosed? Start your journey here.

Need to know

Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.

Personal experiences

It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.

Treatment

There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.