Inmune Bio is expanding its partnership with the U.K.-based charity Anthony Nolan to advance an investigational stem cell therapy — dubbed CORDStrom — that’s primarily being developed to treat the rare skin-related disease RDEB, fully known as recessive dystrophic epidermolysis bullosa. Under the agreement, Anthony Nolan —…
In a new deal, Denmark-based Leo Pharma is acquiring Replay — and its “next-generation gene therapy platform” — with an eye toward developing a topical treatment for dystrophic epidermolysis bullosa (DEB), a rare genetic disease causing extremely fragile skin. The gene therapy company, based in the U.S., is…
Discussion
My mother taught me at a young age not to let recessive dystrophic epidermolysis bullosa (RDEB) define who I am or let it get in the way of who I want to be. I hoped to show others that I was just like everybody else and wanted to be…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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