A noninvasive ultrasound technique successfully “saw” through the skin of a teenager with severe recessive dystrophic epidermolysis bullosa (RDEB), detecting hidden inflammation and scarring without causing the patient any pain. According to a new case report, high-frequency ultrasound (HFUS) allowed doctors to map disease activity beneath the skin surface…
Inmune Bio plans to submit applications this year seeking regulatory approval in the U.K., the U.S., and the European Union of CORDStrom, its experimental stem cell therapy for recessive dystrophic epidermolysis bullosa (RDEB). Inmune announced in a press release that it has formally submitted a pre-submission package…
Discussion
Every couple of years, I interview my son Jonah, who was born with junctional epidermolysis bullosa (EB). After all, it’s his life I’m writing about, so it’s good to get his perspective. Excerpts of our conversation, lightly edited for clarity and style, follow. PW: You’re about to turn 17.
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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