“I just bought a prom ticket,” my son Jonah, who lives with epidermolysis bullosa (EB), texted me a week before the event. I responded with three giant ‼️ emojis (making six giant, red exclamation points, in case that was unclear). Like the unexcitable person that I am. I had…
Wounds of people with epidermolysis bullosa (EB) are frequently colonized by antibiotic-resistant bacteria, which may contribute to poorer wound healing, according to a study from Australia. The scientists said their study, the first of its kind done in Australia, “provides valuable descriptive data on microbial composition and resistance patterns…
Discussion
Epidermolysis bullosa (EB) is, in many ways, a very visible disease. You can see the bandages. The wrapping. The wounds. The scarring. Even if someone doesn’t know exactly what EB is, they can tell something is wrong. But there is still so much that goes unseen, and sometimes, that’s…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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