Tiny packets of cellular cargo called extracellular vesicles (EVs) that are released from placental cells may help calm the chronic inflammation that drives scarring and tissue damage in people with recessive dystrophic epidermolysis bullosa (RDEB), a new study found. In laboratory experiments, these extracellular vesicles shifted inflammatory immune cells…
Discussion
A cell-based study found that a group of experimental drugs designed to restore missing protein production in junctional epidermolysis bullosa (JEB) showed different responses to specific mutations in the COL17A1 gene, a finding researchers said could be used to work toward tailored treatment approaches. The researchers also identified a…
Discussion
I started elementary school in the mid-1990s. The internet was still in its early stages, and there wasn’t nearly as much research and knowledge about epidermolysis bullosa (EB) as there is today. Before I began school, my mom taught me how to talk about my condition because she…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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