In the week leading up to Halloween, advocates around the world will wear their clothes inside out to raise awareness of epidermolysis bullosa (EB). EB Awareness Week runs this year from Sunday, Oct. 25, to Saturday, Oct. 31. The Inside Out campaign is being spearheaded by DEBRA International,…
Discussion
Off-label treatment with apremilast, an oral medication approved for certain inflammatory conditions, helped prevent new inflammatory blisters in an older woman with epidermolysis bullosa acquisita (EBA), a rare autoimmune disease in which blisters form in layers of the skin in response to injury. The 69-year-old woman, who had…
Discussion
An interview study found that epidermolysis bullosa (EB) can affect nearly every part of children’s daily lives. The children described constant pain and wound care, fear of new wounds, emotional strain, social isolation, and difficulty taking part in normal childhood activities. “Pediatric nurses should provide holistic and child-centered care…
Becoming educated and informed about epidermolysis bullosa is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your EB journey.
There is no cure for EB yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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