Mary Chapman, features writer —

Mary graduated from Wayne State University with a degree in journalism. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. She’s won a Society of Professional Journalists award for outstanding reporting.

Articles by Mary Chapman

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

Efforts Ramping Up to Treat EB: Interview with DEBRA

Editor’s note: This is the second in a two-part series on epidermolysis bullosa. The first part, about the complications caregivers experience with the disease, can be found here. Despite the recent clinical-trial failure of SD-101, a once-promising skin cream, efforts are building to better understand epidermolysis bullosa (EB) and…

Life with EB: Tough, Time-Consuming, and Fraught with Risk

Editor’s note: First of a two-part series on epidermolysis bullosa. The second part, focusing on treatments and care, will follow soon. For caregivers, epidermolysis bullosa (EB) is complicated, time-consuming, and fraught with risk, something Jennifer Thompson, who has a 5-month-old with EB, learns anew each day. “I…