In the Skin – Molly Rozelle

At 18 months of age, Molly Rozelle was diagnosed with epidermolysis bullosa simplex, Koebner varient, which has an autosomal dominant inheritance pattern. Molly’s hope for her column is to improve acceptance of physical differences. Molly is from the Pacific Northwest, and she loves lakes, rivers, and forests — a stereotypical fashion for people from the area.

March 24, 2025 Columns by Molly Rozelle

The tooth of the matter: Navigating dental problems with EB

Living with epidermolysis bullosa (EB) is a daily lesson in resilience. One challenge that doesn’t get enough airtime: our teeth. If you have EB, or care for someone who…

February 24, 2025 Columns by Molly Rozelle

It hasn’t been easy, but I’m making strides in accepting my appearance

I’m currently working on accepting my physical imperfections. At this point in my life, motherhood and epidermolysis bullosa (EB) have been the greatest contributors to insecurities about my appearance. With motherhood, my…

January 20, 2025 Columns by Molly Rozelle

How missing toenails due to EB didn’t ruin my second date

Have any of you ever had to share a “fun fact” about yourself following the awkward icebreaker prompt? I’ll go first this time. I don’t have toenails. Loss of toenails is one of my…

December 10, 2024 Columns by Molly Rozelle

How epidermolysis bullosa simplex prepared me for a life in nursing

I was diagnosed with epidermolysis bullosa simplex (EBS) of the Köbner type (now simply known as generalized EBS) when I was just 18 months old. Epidermolysis bullosa (EB) is a rare genetic…