I’ve been wanting to write about life with epidermolysis bullosa (EB) — my life as a so-called butterfly child — for a long time. But I never really knew how to start. Then I was asked to write a column. I was flattered, but I had to start thinking and…
Columns
This is the first autumn I’m spending at home in Vienna after living in Marbella, Spain, for over a year. I was lucky to be in Spain for two summers — and when I say summer, I mean it starts in May and ends in November. But now I am…
Recent Posts
- EB symptoms generally stay stable or even ease during pregnancy: Study
- A new year brings new resolutions (for my son, not for me)
- TCP-25 gel may accelerate wound healing in RDEB: Phase 1 trial
- New mesh-free dressing promotes skin wound healing in EB: Trial data
- Double dose of Vyjuvek safely heals extensive wounds in woman with RDEB