• Monthly Town Halls

    Virtual Event

    EB Research's monthly Town Hall series aims to give the EB community a space to connect not just with each other, but with our team and with leading scientists and researchers […]

  • Plunge for Elodie 2026

    Named after 9-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. […]

  • Vedder Cup

    When the San Diego Padres and Seattle Mariners face off again this season, more than division standings are on the line. Teaming up again to join forces with rock icon […]

  • Grateful for Graham 5K

    Rayhill Memorial Trail Middle Settlement Rd, New Hartford, NY, United States

    The fifth annual Grateful for Graham 5K Run/Walk will take place on May 2nd. Graham Robertello is a 6 year old boy and local superhero who was born with EB. […]

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