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  • EBRP Town Hall event image

    Monthly Town Halls

    Virtual Event

    EB Research's monthly Town Hall series aims to give the EB community a space to connect not just with each other, but with our team and with leading scientists and researchers in the space to learn more about the work EBRP is funding, understand how they can get involved, and directly ask any questions they might […]

  • EBRP Plunge for Elodie banner image

    Plunge for Elodie

    Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. […]

  • EBRP Grateful for Graham event image

    Grateful for Graham 5K

    Rayhill Memorial Trail Middle Settlement Rd, New Hartford, NY, United States

    The fourth annual Grateful for Graham 5K Run/Walk will take place on May 3rd. Graham Robertello is a 5 year old boy who was born with Epidermolysis Bullosa (EB). All […]

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