Expressing My Experiences Through Music – Leslie Morris

Leslie, 38, was born with recessive dystrophic epidermolysis bullosa. He lives in Ontario, Canada, and is studying to be a social worker. Leslie has been playing piano and singing since he was a child.

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Researching my EB diagnosis as a child had long-lasting impacts

Children can be very curious and ask anything that comes into their minds. As a young child in elementary school with recessive dystrophic epidermolysis bullosa (RDEB), I would get curious looks and stares from many students at my school. Some children would ask me questions like, “What happened to…

Columns

Overcoming employment challenges with epidermolysis bullosa

The process of seeking and obtaining employment can be daunting for anybody. Job searching requires confidence, creating professional résumés, and researching multiple job opportunities to figure out which would be the best fit. As someone born with epidermolysis bullosa (EB), I had to consider additional factors as I began…

Columns

Why hobbies are important in life with epidermolysis bullosa

When I reflect on my experience with recessive dystrophic epidermolysis bullosa, one thing that has helped me get through the toughest times is my hobbies. My mother always told me that from the time I began talking, I was also singing. She knew this could become an important part…

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Living with EB, I’ve learned to adapt and prepare for tough days

In the 38 years that I’ve been living with recessive dystrophic epidermolysis bullosa (EB), I have learned that those of us with the condition, as well as those who care for us, must adapt over time to the extra preparation the disease requires. When I was a child,…

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Learning how to cope with EB and anxiety while growing up

My mother taught me at a young age not to let recessive dystrophic epidermolysis bullosa (RDEB) define who I am or let it get in the way of who I want to be. I hoped to show others that I was just like everybody else and wanted to be…