By Focusing on What I Can Control, I’m Finding the Good in 2020
This year, I want to say thank you. Thank you, 2020! I know that many will think, “Why ‘thank you’? Are you crazy?” But no — I just want to be happy. Many people…
Get regular updates to your inbox.
Austria-born Lena Riedl was born with the rare, genetic skin condition epidermolysis bullosa. She was diagnosed with this condition a few months after she was born, but received a completed diagnosis with the EB subtype recessive dystrophic EB only years after. She works with DEBRA Austria, an organization that supports “butterfly children,” as a patient advocate and in a public relations agency in Vienna, Austria. She loves to be with family and friends and her dog as well as travel, sing, play sports, eat brunch, read, and spend time near the sea.
I’ll always feel when the seasons are changing by the way my skin reacts. Here in Vienna, autumn is slowly coming to an end and winter is coming, slowly crawling into our smallest crevices.
Read moreThis year, I want to say thank you. Thank you, 2020! I know that many will think, “Why ‘thank you’? Are you crazy?” But no — I just want to be happy. Many people…
I know, normally we associate love with February because of Valentine’s Day and all. I even wrote a column about love in February. But isn’t Christmas also a time of love? Love for…
It’s getting dark earlier, and it’s cold and gray where I live. The fallen leaves have lost their shades of yellow, red, and green, and are now a mélange of brown. Mist coats the…
This month, one of my childhood dreams came true. Ever since I was 15, I secretly wanted to be a model. But because I have scars on my body due to epidermolysis bullosa, my…
Living with a rare disease, all I wanted my entire life was to be “normal” and to fit in. But I’ve since changed my mind. Not only have I learned to enjoy being “different”…
I am finally back at Bionews and writing as “The Girl with the Butterfly Tattoo.” I can’t tell you how much I’ve missed writing. Due to the coronavirus and the craziness that was…
“People stare at you because you look different. How do you cope with that and why are you proud of the way you look?” This is what Klara Leschanz, a makeup artist and…
What better topic could there be to write about in February than love? Before I started writing this column, I asked what topics people might be interested in reading about. A few said love…
It’s annoying — yes, freaking annoying — when strangers and even acquaintances feel compelled to comment on another person’s appearance. I’ve heard comments like, “Your skin looks better than the last time,” or “Your…
When thinking of a topic for this column, I considered writing on a winter theme. But then, when I think of December, Christmas comes to mind, rather than the season’s cold weather. Christmas for…
I’ve been wanting to write about life with epidermolysis bullosa (EB) — my life as a so-called butterfly child — for a long time. But I never really knew how to start. Then I…
This is the first autumn I’m spending at home in Vienna after living in Marbella, Spain, for over a year. I was lucky to be in Spain for two summers — and when I…
Get regular updates to your inbox.