Girl With the Butterfly Tattoo — Lena Riedl

Girl with the Butterfly Tattoo
Austria-born Lena Riedl was born with the rare, genetic skin condition epidermolysis bullosa. She was diagnosed with this condition a few months after she was born, but received a completed diagnosis with the EB subtype recessive dystrophic EB only years after. She works with DEBRA Austria, an organization that supports “butterfly children,” as a patient advocate and in a public relations agency in Vienna, Austria. She loves to be with family and friends and her dog as well as travel, sing, play sports, eat brunch, read, and spend time near the sea.