We have good days and bad days, and good weeks and bad weeks. Twelve years into our…
Patrice Williams
Patrice Williams is mother to two boys: Jonah, who was born in 2009 with junctional epidermolysis bullosa, and Gideon. She is married to her sort-of high school sweetheart, Matt. They live in Winston-Salem, North Carolina with their two smelly dogs. Patrice works in communications for a nonprofit child welfare organization. She loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
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Articles by Patrice Williams
My son Jonah loves baseball. He watches almost every Atlanta Braves game on TV and looks at…
Like with everything involving epidermolysis bullosa, finding the best bandage routine for our son Jonah, who was…
Like many teenage girls, when I was younger I imagined what my future would look like. I pictured…
Dear Jonah, When you were born with epidermolysis bullosa, they told us there was an…
There are days when Jonah, my 11-year-old son with epidermolysis bullosa, and I feel like educating folks about…
Jonah, my 11-year-old son who has epidermolysis bullosa (EB), is wounded from head to toe and must be…
In another bummer turn of events, my 11-year-old son Jonah woke up on Sunday morning with a corneal…
Our Christmas started out like most people’s. Well, sort of. We, like many, kept it small this year.
I am an extrovert by nature. Most of my life I have gotten my energy from being…
A Few of Our Favorite Things
Oprah recently released her Favorite Things 2020 list, and it got me thinking of my own favorites…
When EB Steals Your Cat
My mom got an adorable kitten last weekend. When I showed my boys the sweet picture she texted…