Choose Kindness When Faced With Differences
“Did a wolf attack your face?” That’s what the preteen asked my son Jonah, who was born with junctional epidermolysis bullosa, when Jonah approached their…
Fragile but Fierce — Patrice Williams
Patrice Williams is mother to two boys: Jonah, who was born in 2009 with junctional epidermolysis bullosa, and Gideon. She is married to her sort-of high school sweetheart, Matt. They live in Winston-Salem, North Carolina with their two smelly dogs. Patrice works in communications for a nonprofit child welfare organization. She loves reading, spending time with family, and being outside. Her greatest talents are taking naps and eating tacos. She hopes this column will give hope to those living with epidermolysis bullosa and light to those who love them.
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Preparing for the future wasn’t high on my priority list — until now
Jonah got his first promotional card from a college last week. We were told that my son, who’s now almost 16, very likely wouldn’t make it to his first birthday, because he was born…
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